This past year has been a series of ups and downs. My daughter Siri, who has Autism and requires routine, has had to adjust to the changing world around her. Every April during Autism Awareness Month, I share my experience as Siri’s mother and our challenges, so that other parents going through something similar can resonate with our stories and see progress.
Before the pandemic arrived, Siri was busy with many activities like functional fitness, boxing, ice-skating, horse riding, and her internship at Goodwill. She is the type of girl who loves to learn new skills and looks for opportunities to keep herself busy.
Naturally, when the pandemic began, we were very worried. We knew that if Siri was bored, she would turn to food as an unhealthy crutch.
To our astonishment, on the third or fourth day into the lockdown period, Siri completely stopped eating and only sought a couple of snacks a day. With both her younger brothers back home during the pandemic, Siri started enjoying their presence in the house. She happily watched them do their zoom classes and ate what they cooked and shared with her. Eventually, we started seeing her shirts and pants fall off her shoulder and hips – all her clothes were extremely loose. We checked with her physician and she said that as long as Siri looks happy, healthy, and is sleeping throughout the night, that we should not worry.
She was so independent that we felt like she had already moved out. The girl who would make her presence known by being loud or pacing when bored had suddenly changed. At one point, we were concerned because we wouldn’t see her often. And when we did see her coming out of her room, she would be happy and humming a tune. She even gave spontaneous hugs to me!
Since her anxiety was at a lower level, I began to teach Siri new skills. We began with some stitching using easy, simple, and small steps. I trained her to make masks and we donated 150 to Saddleback Church in Los Angeles. Siri was so happy to cut the fabric, thread in the needle, and stitch in the way I wanted her to. Her beautiful face glowed as she was packed the masks with a handwritten card inserted in each bag. She started showing interest in drawing and painting too. Later on, we introduced Siri to zoom classes where she was able to do some Bollywood dance, artwork, and also music.
We, along with a few more like-minded families with special needs kids are working on a community in Sonoma County. We want her, and children like her, to live full, healthy lives without needing their parents for support. In pursuit of this, Clearwater Ranch is developing a program for adults like Siri. Siri, along with three more special-needs young women, will be moving into a house on the ranch by the end of this year.
Since Siri’s ability to understand the language is affected greatly by her Autism, we are teaching her about her move by taking her to the ranch every other week. We do drive-thru tours for potential families interested in joining us. We explain the process by showing the homes and talking about the future plans for the ranch.
Our plans for Siri do not stop once she transitions to a new place. Fortunately, this beautiful piece of property sits on an 84acres of land where we plan to develop programs to provide skills to the special-needs residents. We plan to teach them weaving, candle and soap making, painting, farming, pottery, while continuing to focus on their fitness and recreation activities too.
Siri’s future is bright and promising!
Join us by following her journey via her Social Media:
YouTube – https://bit.ly/3uOjY3z
Siri’s online business: www.DesignsBySiri.com
Siri’s future home: www.CRanch.net
Swathi Chettipally is a devoted mother and an Autism advocate. Find more about her work with Siri on pinterest, instagram, and youtube.
