Tag Archives: Treatment

Treatment From Mumbai to Houston: Help A Family

This is about my husband, Sanjiv Agarwal.

Sanjiv is the quintessential 40-year-old – an engineer, working as a marketing professional with an FMCG company. Full of dreams and full of life, always smiling, super intelligent, the center of attraction of any gathering, the best son to his parents, the most caring brother to her sisters, and a doting father to my 11-year-old boy. He is a young heart wanting to achieve something big and also enjoy it to the fullest. His friends would describe him as an absolute gem.

We met at our MBA school and became best friends instantaneously. While I tried to keep finding the best girlfriend for him, we both fell in love ourselves. We got married a few years later in 2007 and now we have a son who is 11-year-old and three of us were leading a small happy life.

Last year our lives turned upside down. Sanjiv was diagnosed with high-risk blood cancer – Acute Lymphoblastic Leukemia B – in May 2020. We were absolutely shocked, as there is no family history of cancer. We were informed that the cure was few rounds of Chemotherapy ultimately followed by Bone Marrow Transplant. We had one day’s notice to decide and commence the Chemo as his case was very acute.

Post his first chemo, Sanjiv developed an extremely rare and troublesome fungal infection while he was immunocompromised. This got us into a vicious cycle as the fungal infection prohibited further chemo treatment without which cancer would not go away into remission. By early November, cancer showed up on his skin as leukemia deposits. His condition worsened with leukemia in the blood, leukemia in the skin, and fungal infection in the body. That’s when doctors in India raised their hands and told us that MD Anderson Hospital in Houston, USA was our best hope. By mid-November, I moved to Houston, temporarily, along with Sanjiv and my son.

Treatment is definitely possible, but prohibitively expensive. 

Doctors here are trying to balance out the chemo and infection treatment to get him ready for a Bone Marrow transplant. We are done with 2 rounds of Chemotherapy and there have been lots of complications post Chemo, and now we await BMT as a final step. BMT is a very intensive process where the body’s immune system is being rebooted and can be complicated as well. The positives news is that the leukemia in the bone marrow is under control, skin leukemia is being treated with Radiation and the bone marrow transplant is now being discussed with the best doctors here.

The last 8 months have been extremely draining for us as a family- physically, emotionally, and financially. All our life’s savings have been used up in the treatment in Mumbai and America.

I have created a Gofundme page: https://gofund.me/0b63f076

I am highly hopeful that I can find some help here in this foreign country from fellow Indians. I want to complete Sanjiv’s treatment here and take him home healthy and hearty.


Prerna Garg has written this piece to receive help for her husband.

St. Jude Children’s Hospital Named Official Charity Partner for 2020 South Asian Spelling Bee’s Regional Competitions

is the official charity partner of the South Asian Spelling Bee’s (SASB) virtual regional events on Sunday, Aug. 23, in Seattle, Washington, and on Sunday, Aug. 30, in Fremont, California. 

SASB is an annual spelling bee in the United States for children of South Asian descent. Founded in 2008, the event has become the essential gateway for success at the popular Scripps National Spelling Bee. In fact, 11 of the 15 Scripps champions are alumni of the SASB since 2008. This year’s installment of the SASB will be held virtually across six regions, whose winners will get a chance to compete at the finals in September.

Just like SASB, St. Jude has a deeply held commitment to education not only as a research institution, but also as a children’s hospital responsible for providing long-term care to childhood cancer patients. For children undergoing treatment, the St. Jude School Program by Chili’s not only offers a familiar routine with St. Jude teachers offering one-on-one instruction for K-12 students, but also provides patients with a feeling of being in lockstep with the outside world.  In addition to K-12, students from around the world also have an opportunity to attend the St. Jude Graduate School of Biomedical Sciences, further displaying the importance of education within the core values of St. Jude.

 Because of generous donors, families never receive a bill from St. Jude for treatment, travel, housing or food – so they can focus on helping their child live. St. Jude also freely shares the breakthroughs it makes, so every child saved at St. Jude means doctors and scientists worldwide can use that knowledge to save thousands more children.

This is what makes a difference for patients like Smyrna and her family. At St. Jude, Smyrna’s treatment for medulloblastoma, a type of brain cancer, included radiation therapy and chemotherapy. Smyrna celebrated the end of her treatment with a No More Chemo party, surrounded by her care team, friends and family.

St. Jude Children’s Research Hospital is a humanitarian effort supported by millions of Americans of all faiths and backgrounds united in their desire to help St. Jude continue its mission: Finding cures. Saving children.® Because together, nothing is impossible.

Donor support for the patients of St. Jude Children’s Research Hospital brings hope and comfort to their lives. Share a sweet message today by sending a patient art-inspired card to fill their day with happiness.  

St. Jude Children’s Research Hospital®

St. Jude Children’s Research Hospital is leading the way the world understands, treats and defeats childhood cancer and other life-threatening diseases. Its purpose is clear: Finding cures. Saving children.® It is the only National Cancer Institute-designated Comprehensive Cancer Center devoted solely to children. Treatments invented at St. Jude have helped push the overall childhood cancer survival rate from 20 percent to more than 80 percent since the hospital opened more than 50 years ago. St. Jude won’t stop until no child dies from cancer. St. Jude freely shares the discoveries it makes, and every child saved at St. Jude means doctors and scientists worldwide can use that knowledge to save thousands more children. Families never receive a bill from St. Jude for treatment, travel, housing or food – because all a family should worry about is helping their child live. Join the St. Jude mission by visiting stjude.org, liking St. Jude on Facebook, following St. Jude on TwitterInstagram and TikTok, and subscribing to its YouTube channel.

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Lovesick in San Jose

Check out this movie for yourself on Saturday Oct 20, 2018 in San Jose! Details here: https://indiacurrents.com/events/film-show-lovesick/

I watched Lovesick at the Indian Film Festival of Los Angeles, which comes with the usual homey discord of diasporic film festivals. The people behind me were passing tupperware filled with aloo gobhi. The harangued IFFLA staff member was pleading people to lower their voices as he introduced the filmmakers. I was at once amused — as a film student, I’m usually surrounded by a much more reverential crowd — and admittedly irked — I would like to hear the filmmakers’ introductions and nobody passed me any aloo gobhi. Under the wafting smell of aloo gobhi, I feel at home and alien. It was under these classically clashing circumstances that I watched Lovesick, which also seemed to be trying to navigate pleasing two worlds and settling neither here nor there.

The directors of Lovesick, Ann S. Kim and Priya Giri Desai, were both working at PBS when they came across an article about Dr. Suniti Solomon, the first person to find HIV in India. In the film, we learn that Dr. Solomon is more aptly described as the first person to even look for HIV in India, which she found widespread in sex workers. She then left what she described as “her prestigious academic job” to found a clinic for people with HIV.

Here’s where it begins to get wacky. Through founding the clinic, Dr. Solomon somewhat organically created a matchmaking service to help HIV positive people find partners, a practice which the directors claim is now common in Indian HIV clinics. Ann and Priya decided Dr. Solomon’s story was too big for a throwaway article, and through a mutual connection decided to meet her in person. Eight years later, they birthed Lovesick, a longitudinal documentary on Dr. Solomon’s life and the story of a successful couple she matched.

The film is humorous, poignant and tender. Dr. Solomon matches couples because she too was madly in love for many decades. Her late husband was Christian and she is Hindu, yet, in a tale as old as time, love conquered all. I’m a sucker for a sappy love story, so I was moved when I saw Dr. Solomon read out passionate letters her husband wrote to her, which she now keeps sealed in a ziplock bag. Later, she waters the purple orchids surrounding her husband’s picture. “His favorite flower,” she remarks, standing next to a shelf of Christian and Hindu paraphernalia. We begin to understand why Dr. Solomon is such an advocate for finding love.

Through her matchmaking service, we meet Manu and Karthik, two of her “lovesick” patients. Their faces are not shown for most of the film because HIV is still so taboo in India — best evidenced by a sequence in the film where Manu’s Mother asks if she can say the word “HIV.” Both Manu and Karthik are sweet and lovable, but there is a certain emphasis placed on the fact that neither was “to blame” for contracted HIV. Karthik was given tainted blood and Manu was married to a man who never revealed to her that he was HIV positive.

In fact, the communities Indian society would like to blame for HIV, are curiously absent from the film. For example, Dr. Solomon first found HIV in sex workers, yet not a single sex worker is interviewed in the film. We know HIV to predominantly exist in the gay community, but Dr. Solomon’s matchmaking service seems to only match heterosexual, or seemingly heterosexual, couples.  

As sweet and deserving of love as Manu and Karthik are, the fact that they are able to find it is predicated on his Brahmin caste and her educated background, as Dr. Solomon’s staff giddily relay in the matchmaking process.

By the end of the film, Manu and Karthik decide to allow their faces to be shown. The couple even spoke at the screening in New York and have committed to be the public faces for HIV clinics in India.

The film is an homage to the remarkable Dr. Solomon, who passed away before the film was released. At times, she even even goaded men into coming in to receive treatment by telling them they would only find love if they took care of themselves. She understood the interconnectivity between human wellbeing and love — and all of its accoutrements, like desire and compassion — and her own love for others will always be remembered.

Urvashi Pathania is a film-maker who writes from Los Angeles, where she attends the University of Southern California. You can learn more about her at urvashipathania.com.

This review was originally published by India Currents in April, 2018. It was edited by Culture and Media Editor Geetika Pathania Jain.

 

 

Lovesick: A West Coast Premiere

After discovering the first cases of HIV in India in 1986, Dr. Suniti Solomon left a prestigious academic job to build her own clinic focusing on treating HIV/AIDS patients. Several decades and breakthroughs in treatment later, her clinic is one of the highest regarded in the country and her patients are living longer lives. While surviving, some of

HIV infected Tcell

her patients are not thriving. Being Indian, they feel immense societal and personal pressure to marry, but simultaneously face a stigma of being HIV-positive. Now in the twilight of her impressive career, Dr. Solomon takes the next step in her treatment by creating a matchmaking service for those seeking marriage. Through the service we meet Manu and Karthik, two of her patients who want to share their lives with someone but are fearful they never will. Shot over eight years and told with compassion and care, filmmakers Ann S. Kim and Priya Giri Desai give us a surprising and hopeful story about the universal healing ability of companionship and love.

Priya Giri Desai’s work in print and broadcast media spans two decades and includes work for outlets such as LIFE magazine, PBS and independent film projects. Desai is a graduate of Duke University and a founding board member of The India Center Foundation, a cultural non-profit organization in New York dedicated to the study of the Indian subcontinent, the promotion of its cultural life, and the unique relationship between India and the United States. Ann S. Kim is an independent filmmaker who has reported on a range of science global health issues for public television and radio. From 2016-2017, Kim served as the first Chief Design Officer for the U.S. Surgeon General, bringing design thinking into government and urgent public health issues of addiction, opioids, and social isolation.

Lovesick had its world premiere at DOC NYC in November 2017. It will screen on April 14 at the Indian Film Festival of Los Angeles and again on April 29 at the International Film Festival Boston.

More info at lovesickthefilm.com