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7th Grader Fights Anti-Asian Sentiment

The coronavirus is our generation’s distorted empathy quotient. As this life-threatening disease ravages low-income and minority communities, it becomes the world’s responsibility to protect our society’s most vulnerable. And from the mass-anxiety of COVID-19, the best and worst of society has bled into our daily lives. On one hand, GoFundMe is flooded with pages raising money for coronavirus victims. Young teenagers are distributing groceries in working-class neighborhoods while retweeting instructional videos for public safety. But the less endearing side to this narrative is also the most difficult to confront; Coronavirus concerns are being transformed into socio-political dog whistles for xenophobia and hate crimes.

Since the outbreak in January, New York City alone has reported 248 cases of race-based discrimination. On March 14th, a young man stabbed a family of three because they were of Asian-American descent and thus ‘spreading the virus’. A Chinese-American couple in Minnesota reported finding a derogatory and racist note left on their door. Without necessary precautions, our country may succumb to paranoia and racism before it caves into COVID-19.

OCA letter signed by Teens For Vaccines.

To discuss the implication of such violence, I had a chat with 7th grader, Arin Parsa, a Davidson Young Scholar and founder of Teens for Vaccines. A strong proponent for public health and safety, Arin reached out to OCA, a national organization dedicated to preserving the rights of Asian-American Pacific Islanders. On March 31, Arin’s Teens for Vaccines co-signed OCA’S letter to President Trump, the FBI, and the DOJ demanding the urgent creation of a Task Force via Executive Order. This Task Force, Arin hopes, will allow the FBI to increase data collection and the DOJ to prioritize prosecutions against COVID-19 hate crimes. But his efforts extend well beyond preventing prejudice. Deeply concerned about PPE shortages (Personal Protective Equipment) for health care staff and senior citizens, Arin is raising awareness for sophomore Aditya Indla’s GoFundMe campaign to 3D Print Face Masks for healthcare professionals. When we spoke with Arin about his efforts, he discussed both his inspiration and ambitions for the near future.

KN: First of all, your contributions to public health and safety amid the COVID-19 outbreak are absolutely amazing. What drew you to establishing Teens For Vaccines?

Arin Parsa: Thank you for the kind words! I founded Teens for Vaccines in August 2019 when herd immunity in California was falling dangerously below 95%, a risk for yet another measles outbreak. The bill, SB 276, had to be pushed through to stop fraudulent medical exemptions to vaccines.

I was inspired by Ethan Lindenberger, an Ohio teen, who fearlessly testified in Congress about his decision to vaccinate himself despite his anti-vax mother’s beliefs. I spent my summer in NY at a research camp to truly understand what makes people anti-science. I found that, although skepticism was legitimate during the smallpox era, it had no standing in the modern world. Many are swayed by misinformation on social media about vaccine safety and vaccine ingredients (e.g. derivatives of pork, fetal strain from the 1960s), spread by a highly vocal anti-vax minority funded by alternative medicine practitioners and anti-government interests. Millions are being made by peddling dietary supplements as a replacement for vaccines. Sure, science isn’t perfect, and there are rare cases when vaccines are not suitable, but deliberately misleading vulnerable parents and religious communities, putting entire neighborhoods at risk, is deplorable. Over 140,000 have died from measles globally when we have a vaccine for it. The COVID-19 pandemic is a wake-up call for all of us.

KN: For those who are unaware of your cause, would you like to explain the purpose of Teens For Vaccines? As the response to the coronavirus develops, what is the group’s primary goal for the future?

Arin Parsa: Teens for Vaccines is about educating teens on vaccine safety and minor consent laws from trusted sources, and connecting teen advocates worldwide. I recently connected with an HPV Vaccine advocate from Ireland!

Education empowers us from falling prey to misinformation and rhetoric of medical freedom and anti-government messages. Amplifying the voices of immunization coalitions, doctors, and epidemiologists is a huge endeavor, whether in our local communities or through social media. In fact, as we speak, anti-vaxxers are denying the COVID pandemic, questioning social distancing, and peddling false cures.

Teens for Vaccines is also anti-hate since a lot of teens like Ethan face dire threats when they go against the anti-vax lobby. A huge realization I had a few weeks ago was the extreme racism suffered by Asians. Teens feeling isolated, alienated, spit on, hit, yelled at, and attacked is not good for their mental health. Suicide rates among the teen demographic are at dangerous levels. Teens for Vaccines is first and foremost about teen health, and I sought out OCA – Asian Pacific American Advocates, a national organization to co-sign their letter and demand action from President Trump, FBI, and DOJ.

KN: What do you hope to accomplish with the creation of an Anti-Asian Hate Task Force via an Executive Order? Why a Task Force, specifically?

Arin Parsa: A Task Force will put a light on the escalating violence against Asians, sending a very strong signal throughout America that we will not tolerate the insidious hate that is riding on the coattails of this pandemic. Being a history student, I know racism is a deep-rooted belief. As much as we want to change people through messages of empathy and solidarity, sometimes only fear of consequences will stop such people in their tracks. A federal task force, working together with local law enforcement, can bring in swift action in collaboration with the FBI’s deep data collection programs, and DOJ prioritizing prosecuting hate crimes.

KN: Do you think government authorities are not taking swift action in ensuring the security of minority communities — including Asian-Americans — during this outbreak? How do you think their action — or lack of it — impacts the current socio-political climate?

Arin Parsa: No one realized how quickly deep-rooted racism would come to the surface. It is not that the government isn’t doing anything about it: the FBI has warned of a surge. President Trump, after having said “Chinese Virus” tweeted that he didn’t intend to use it derogatorily. But, it is clear that more needs to be done than just condemning the acts.

The Asian demographic is a huge contributor to America’s scientific and technological advancements. Lack of immediate action can lead to an extremely fractured America and potential intellectual drain out of America.

KN: Despite the mass-anxiety of a global pandemic, how do teens cross boundaries and establish solidarity with other ethnicities and groups?

Arin Parsa: The power of the internet can truly be harnessed in these times. Joining diverse groups through social media of their choice, whether it is Discord, Slack, Facebook, Twitter, or Reddit, we can reach out and understand others. Teens can join the r/StopAntiAsianRacism, follow @BurntRiceBunch to show support to Asian teens who are suffering. Empathy is about listening and can be really powerful, so responding with thoughtful comments can go a long way. I also welcome everyone to TeenOpinions.org to write and show solidarity. Music is a universal language, so joining online concerts such as One World: Together at home on April 18 can build a feeling of togetherness. Locally, in our communities, we can make a difference too. Even a hand wave and a smile to the ones in your neighborhood can be extremely uplifting.

KN: It’s wonderful that you’re so involved and politically self-aware. Any advice for other teenagers who want to support society’s most vulnerable during this difficult time?

Arin Parsa: Thank you. First and foremost, respecting the shelter-in-place orders itself is a show of support to those who are most vulnerable. Protecting ourselves is protecting others. Checking out state and county websites are great places to know how we can help: sewing masks (with mom’s help if needed) or using a 3D printer if you have one, creating care packages, writing thank you emails to hospitals, making yard signs of hope, doing grocery runs for our elderly neighbors, or simply calling a senior center and enquiring are ways we can help. Having a sense of purpose and togetherness can help us get through these difficult times.

Kanchan Naik is a junior at The Quarry Lane School in Dublin, CA. Aside from being a Student Intern for India Currents, she is the editor-in-chief of her school’s news-zine The Roar. She is also the Teen Poet Laureate of Pleasanton and uses her role to spread a love of poetry in her community.

Seema Verma, administrator for the Centers for Medicare & Medicaid Services, sat down for a rare one-on-one interview with Kaiser Health News senior correspondent Sarah Varney.

They discussed her views on President Donald Trump’s plan for sustaining public health insurance programs, how the administration would respond if Obamacare is struck down by the courts in the future and her thoughts on how the latest “Medicare for All” proposals would affect innovation and access to care.

A portion of their conversation aired on PBS NewsHour on Dec. 23. A transcript follows, edited for length and clarity.

Sarah Varney: Thank you, Administrator Verma, for joining us. We really appreciate it. You spoke recently about this need to protect Medicaid as a lifeline, but also not to have people be entrapped, or trapped on, Medicaid and come to rely upon it too greatly. So, as I was mentioning, we were in Tennessee recently, and I know you can’t speak to specific cases —

Seema Verma: Mmm, hmm.

Varney: But, we did find a number of families who had been disenrolled, and then found it quite difficult to get back on. And I just wondered if there is a danger in taking this approach where there’s more frequent verification checks, a real focus on eligibility verification, that it could discourage some parents and kids who might be eligible for the program from signing up?

Verma: Well, our top priority is making sure that the beneficiaries in the Medicaid program have high-quality, accessible care, and we want to do everything that we can to improve the quality of their lives. In terms of the enrollment process, we also have an obligation to taxpayers to make sure that only the people that qualify for the programs are participating. And we also want to make sure that the programs are sustainable over the long term. I think there’s a balance between making sure it’s easy for people to apply, but we also have to make sure that we do the appropriate work to make sure that they qualify for the programs.

Varney: So, are you concerned, though, that there were a number of people, after the eligibility process kicked in again in 2017, after the ACA sort of put things on hold for a while, that there might have been families, though, that have been lost? That just don’t want to come back, or can’t come back? Or are hearing worries about the public charge rule, as well, and so are concerned about giving the government their information?

Verma: You know, our top priority is making sure that we focus on improving quality of care, high-quality care, accessible care, and making sure that we’re improving the quality of life for individuals. You know, when I think of the Medicaid program, and in every decision we make, I try to keep in mind the actual beneficiary. In my time spent on the Medicaid program, I’ve met a lot of Medicaid beneficiaries. I met a gentleman, Richard, who was in Indiana. He was a quadriplegic and literally requires 24-hour care. I met some parents of a child on the Medicaid program. This child had cerebral palsy and so severe that they require 24-hour care, and you can imagine the impact on the entire family. This is a child that will never be independent, will always require help. And so, when we’re creating our eligibility policies, we keep those individuals in mind. We don’t want to make it harder for them to apply for the program.

And so, we try to come up with policies that don’t put a lot of onerous requirements on the beneficiary, but we can have requirements for states that require them to do back-end processes, and back-end checks that don’t actually burden the actual recipient or their families, but that also ensure that we are putting the appropriate protections in place for taxpayers, so the program is sustainable over the long term. And we have only the people that qualify for the program participating.

Varney: We know that more health coverage leads to longer life expectancy; I think this has been well established. And I wonder if whether or not the administration should be emphasizing more finding those children who are not enrolled, who are eligible but not enrolled, and perhaps focusing on outreach, which we haven’t really heard your administration talk about?

Verma: Well, again. Our focus is on making sure, especially children, that they have access to high-quality health care. As a mom, I’ve got two kids, so I can personally attest to the fact that having health insurance is very important for children. Something very little, like an ear infection, can lead to deafness if it’s not, you know, treated appropriately. So having that access to high-quality health care is very, very important to their development. The Trump administration is very committed to the Children’s Health Insurance Program; the president signed legislation around that. Additionally, we have spent over $48 million on outreach efforts. We’re very focused on working with states, so that they can identify the best practices to make sure that those individuals, children that qualify, can enroll in the program, that they’re aware that this program exists.

Varney: Have you found that the reduction in the Navigator grants has made it more difficult to reach those families?

Verma: We, actually, we have not. If you look, the Navigator programs are really aimed at the Affordable Care Act programs and the exchange programs. So those are not aimed at children. Those are aimed at our adult population. And we have seen very minimal impact. What we have done is try to increase our digital communication, of, to help enrollment. And we’ve seen a very minimal impact on enrollment.

I think the issue around enrollment really comes back to affordability. Obamacare has had a direct impact on increasing premiums. Across the nation, we’ve seen premiums go up by 100%, 200%. [Editor’s note: PolitiFact rated this claim by the Trump administration “false.” ACA premiums were down by about 4 % in 2019 compared with 2018.] And so the issue around enrollment is that health insurance has become so unaffordable for families that that’s why they can’t afford their coverage.

Varney: So we did hear from a number of federally qualified health centers that although the Navigator grants really were focused on, you know, ideally they were focused on exchanges, people buying private health insurance, that, in fact, there were a lot of people who came in, who became eligible for Medicaid and discovered that they were eligible for Medicaid in that way. So I wonder if there is additional outreach that needs to be done to those families, not just virtually or online, but some other way to reach those families?

Verma: The real problem around making sure that people have access to affordable coverage is really addressing the high cost of health care. And that’s what the president is focused on. His health care agenda isn’t just about putting out more subsidies and having the government pay more and more and creating unaffordable programs. But it is about addressing the underlying cost drivers in health care. That’s why he’s focused on prescription drug pricing, he’s focused on transparency, price transparency, so that there’s more competition in the market. We’re also focused on getting rid of burdensome regulations that we know drive up the cost of care.

I think by addressing that, that is going to result in decreased premiums, which will result in more people having access to affordable coverage.

Varney: But all those things that you just mentioned — they don’t necessarily affect the Medicaid population directly. Now, they may affect them indirectly by increasing overall health care costs, but in terms of the Medicaid population, really reaching out, ensuring that every single child who’s eligible for Medicaid is enrolled?

Verma: So, our focus is also on addressing the economy. Under the president’s leadership, we have a booming economy. We have one of the lowest unemployment rates. We have more people that are earning more money, and we have fewer people living in poverty. There’s been a reduction in the number of people living in poverty by 1.4 million people. And so, we are seeing people coming out of the Medicaid program, and because the economy’s doing so well. The issue is, though, they can’t afford coverage. And so, even as we increase our outreach efforts, we spent over $48 million on outreach, the issue is around affordability. Obamacare has impacted the market in such a way that it’s become unaffordable for people that don’t have subsidies.

Varney: So, we’re at this moment in our country and our national conversation where we’re talking about how do we ensure that more and more people are insured? And I wonder what the administration is doing to move the needle, to stop the growth in the uninsured, particularly among children?

Verma: I think our focus has been about addressing affordability of health care. The underlying issue in people not being able to afford their health insurance is that it’s too expensive. And the solution is not trying to throw more government money around subsidies, because that’s just going to increase taxes for everybody. Our approach is to address the underlying issues. President Trump is addressing long-standing issues in health care that haven’t been addressed by any administration. The blueprint that he put out on drug pricing was very historic. The work that he’s done on price transparency. And the work that we’re trying to do around the regulatory burden, getting rid of all kinds of unnecessary regulations that are actually increasing the cost of health care for providers. We spend over $200 billion on administrative costs every year. So what we’re trying to do is address the cost of health care, but also make sure that we continue to have the high-quality, innovative health care system that Americans are used to.

Varney: So there are some people who are advocating for a Medicare for All type of solution to this, to say that much of those costs are because the marketplace, in a sense, doesn’t work in health care. And I wonder what you say to people who are proposing that? Who are saying, this is all just, that the market doesn’t work when it comes to health care?

Verma: So, when it comes to health care and it comes to the solutions around Medicare for All. … Medicare for All would strip Americans, 180 million Americans, of their private health insurance and put them on a government-run, bureaucratic program. If we look at the programs that we have today, our government-run programs, our Medicare program is not affordable. The Medicare Trustees have indicated in the next seven years they’re gonna run out of money, they’re gonna have trouble paying their bills. The Medicaid program is the No. 1, No. 2 budget item for many states. And you’re hearing states every day — look at the situation in New York, where they can’t afford their Medicaid programs. And so, our track record on government-run programs isn’t strong. And I think our focus is on trying to unleash competition to drive down costs, but keep the innovation in the system. Our concern is that a government-run or more government is going to thwart innovation.

As the head of the Medicare program, I see every day that government regulations kind of stand in the way, that there are delays in our beneficiaries being able to access treatments. That’s why the president put out the Medicare Executive Order, which was focused on making sure we can do better with this. But I think, you know, putting more people on a government program is actually going to threaten the sustainability of the programs that we have in place today.

Varney: And do you think through the measures that you’re talking about, that you could reduce costs — 15%, 20% — in the health care system of the United States?

Verma: I think our goal is to try to reduce cost, and to make it more unaffordable [sic]. And we’ve had great success with this under President Trump’s leadership. If we look at the Medicare Advantage Program, for example, under his leadership, premiums have gone down by over 23% since he came into office. In the Part D program, premiums are down by 13%, the lowest level in seven years. Going back to Medicare Advantage, that’s the lowest level in 13 years. So, I think the president’s policies are working, because we demonstrated that we can lower premiums.

Same thing on the individual exchanges. For the very first time, the individual market has been stabilized and premiums went down last year by a percent, this year by 4%, and they’re still too high, there’s a new class of uninsured being created by Obamacare, but President Trump’s policies have actually resulted in more Americans, more seniors having money back in their pockets.

Varney: Now we’re waiting for a ruling from the courts on the future of the Affordable Care Act. If it’s struck down, what is your plan to replace it?

Verma: Well, the president’s been very clear that he wants to make sure that individuals with preexisting conditions have protections. And we have prepared for a variety of scenarios, and we want to make sure that there’s no disruption in coverage. And we’ll work with Congress to make sure that Americans have access to high-quality, affordable coverage. That is not what they have today. People with preexisting conditions do not have those protections. Individuals that don’t get subsidies and can’t afford coverage really don’t have those protections. And so the president wants to make sure that we’re addressing those individuals, and that people with preexisting conditions have the appropriate protections that they don’t have today.

Varney: But how do you guarantee those protections, also reduce costs and not lead to widespread uninsurance rates going up?

Verma: I think our focus is not just on costs, but it’s also making sure that we preserve quality and innovation in the system. One of the initiatives that we’ve had is around trying to pay our providers differently. Right now, we’re paying in a system where we just pay for people to get things done. And we want to change that paradigm, where we’re holding providers accountable for providing quality care, improving the quality of life, preventing disease and keeping people healthy.

Varney: So, just my final question. There have been these reports of a rift, a growing rift between you and Department of Health and Human Services Secretary Alex Azar. And I wonder if people should be concerned about whether or not that’s going to get in the way of the very ambitious slate of initiatives that you and President Trump have planned?

Verma: Well, Secretary Azar and I are both committed and have a shared goal around delivering on the president’s agenda.

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7th Grader Fights Anti-Asian Sentiment

One-On-One With Trump’s Medicare And Medicaid Chief: Seema Verma

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