Tag Archives: Leukemia

Treatment From Mumbai to Houston: Help A Family

This is about my husband, Sanjiv Agarwal.

Sanjiv is the quintessential 40-year-old – an engineer, working as a marketing professional with an FMCG company. Full of dreams and full of life, always smiling, super intelligent, the center of attraction of any gathering, the best son to his parents, the most caring brother to her sisters, and a doting father to my 11-year-old boy. He is a young heart wanting to achieve something big and also enjoy it to the fullest. His friends would describe him as an absolute gem.

We met at our MBA school and became best friends instantaneously. While I tried to keep finding the best girlfriend for him, we both fell in love ourselves. We got married a few years later in 2007 and now we have a son who is 11-year-old and three of us were leading a small happy life.

Last year our lives turned upside down. Sanjiv was diagnosed with high-risk blood cancer – Acute Lymphoblastic Leukemia B – in May 2020. We were absolutely shocked, as there is no family history of cancer. We were informed that the cure was few rounds of Chemotherapy ultimately followed by Bone Marrow Transplant. We had one day’s notice to decide and commence the Chemo as his case was very acute.

Post his first chemo, Sanjiv developed an extremely rare and troublesome fungal infection while he was immunocompromised. This got us into a vicious cycle as the fungal infection prohibited further chemo treatment without which cancer would not go away into remission. By early November, cancer showed up on his skin as leukemia deposits. His condition worsened with leukemia in the blood, leukemia in the skin, and fungal infection in the body. That’s when doctors in India raised their hands and told us that MD Anderson Hospital in Houston, USA was our best hope. By mid-November, I moved to Houston, temporarily, along with Sanjiv and my son.

Treatment is definitely possible, but prohibitively expensive. 

Doctors here are trying to balance out the chemo and infection treatment to get him ready for a Bone Marrow transplant. We are done with 2 rounds of Chemotherapy and there have been lots of complications post Chemo, and now we await BMT as a final step. BMT is a very intensive process where the body’s immune system is being rebooted and can be complicated as well. The positives news is that the leukemia in the bone marrow is under control, skin leukemia is being treated with Radiation and the bone marrow transplant is now being discussed with the best doctors here.

The last 8 months have been extremely draining for us as a family- physically, emotionally, and financially. All our life’s savings have been used up in the treatment in Mumbai and America.

I have created a Gofundme page: https://gofund.me/0b63f076

I am highly hopeful that I can find some help here in this foreign country from fellow Indians. I want to complete Sanjiv’s treatment here and take him home healthy and hearty.


Prerna Garg has written this piece to receive help for her husband.

Mahesh’s Life in the Balance


Alameda, CA –  Mahesh, a 68-year-old man, is a loving husband and father of two. In May 2019, he was diagnosed with Acute Myeloid Leukemia (a type of blood cancer), the day after celebrating his son’s marriage. A stem cell transplant is Mahesh’s only chance of beating this disease. Before a transplant takes place, a matching stem cell donor must be found.

Mahesh has spent four months in the hospital and his need for a match is urgent. Initially, five matches were found on the registry in India. But, these donors declined to move forward or were ineligible to donate their stem cells. No donor has been found on the Be The Match® national registry.

Matching is based on your human leukocyte antigen (HLA) tissue type. Your HLA is part of what makes you ‘you’ – your individual genetic characteristics. So, HLA matches are closely based upon a patient’s ethnicity.

Mahesh is South Asian/Indian. So, his perfect stem cell match will most likely be someone who is Indian or someone with Indian ancestry. You have a 30 percent chance of being a match with a sibling. But, Mahesh’s siblings are not the best match for him.

Mahesh family is from Central/Eastern India. His parents hail from Orissa. Today South Asians make up one percent of the bone marrow registry.

“My father’s health is rapidly declining and he needs a stem cell match right away,” says Amrut, Mahesh’s son. “If you are South Asian/Indian then signing up might save our Dad’s life or, if you are not a match for him, you might also save the life of another South Asian looking for a match. We need your help!”

More about Mahesh

Mahesh is a father, a husband, and a friend. He is also a leukemia patient. His heritage, Indian American, is preventing him from finding a matching donor because there aren’t enough Indians registered as potential donors.

Mahesh with his family

“I am completely dependent upon the registry to find a match, as my leukemia is aggressive,” Mahesh says. “There are zero matches for me. Being of Indian-American heritage, the population is severely under-represented as donors. If you have just five minutes, I ask you to register.”

Join the registry by texting MAHESH to 61474

What’s the Solution?

People of color are more likely to die of leukemia and other blood cancers because there is a shortage of diverse HLA types on the Be The Match® national registry. It is vital to build a more diverse registry so everyone has an equal opportunity to survive blood cancers.

Encouraging more people of ethnically diverse backgrounds and those of mixed heritage to be committed and join the Registry, potentially saving a life.  Each of us can “Be The One to Save a Life!”

The Asian American Donor Program (AADP, www.aadp.org) is a 30-year-old community based nonprofit 501 (c) 3 organization, based in Alameda, CA, that works to educate community members about marrow donation and the importance of joining the Be The Match® national registry. It is the oldest nonprofit of its kind in the country. AADP staff is dedicated to increasing the availability of potential stem cell donors for patients with life threatening diseases curable by a blood stem cell or marrow transplant. AADP is an official recruitment center for Be The Match®.

“For thousands of severely ill blood cancer patients, there is a cure,” says Carol Gillespie, AADP executive director. “You could be the cure. Those whose marrow/stem cells are not a match for a patient in need now may be a match for someone else down the road, anywhere in the world. I encourage all individuals to commit to registering. It is simple to register – just a swab of the inside of your cheek.”

When a marrow match is not readily available, patients have to wait longer than is ideal to find a match. Once a match has been found, their disease may have progressed to the point that they are no longer eligible for a transplant.

Importance of Diversifying the Registry

In 2019, an estimated combined total of 176,200 people in the US were expected to be diagnosed with leukemia, lymphoma or myeloma. New cases of leukemia, lymphoma and myeloma were expected to account for 10 percent of the estimated 1,762,450 new cancer cases diagnosed in the US in 2019. (From: https://www.lls.org/facts-and-statistics/facts-and-statistics-overview/facts-and-statistics

The Be The Match® registry recruits hundreds of thousands of donors each year through an extensive network of about 100 local and regional Community Engagement Representatives and organizations. You only need to join the Be The Match® registry once.

Marrow/stem cell matches are very different than blood type matches.  Just as we inherit our eyes, hair, and skin color, we inherit our marrow and stem cell tissue type.

How You Can Commit to Help

Or, text MAHESH to 61474

  • You must be 18 to 44 years old and meet general health requirements.
  • Complete the online consent form and a swab kit will be mailed to you.
  • Be committed. Be ready to donate to any patient in need.
  • Other ways to help – call AADP at 1-800-593-6667 or visit our website http://www.aadp.org

Please take a few minutes of your time to learn more about how you can help save a life and register as a marrow donor.

Anish Aggarwal & Bone Marrow Database Needs Indian Donors

Indians around the world desperately need your help, prayers, energy, social media posts, and most importantly, your saliva. Anish Aggarwal, walked into a hospital a few weeks ago with stomach pain and was quickly diagnosed with Acute Myeloid Leukemia (AML), a rare and fast progressing cancer.  He has been in the hospital under quarantine since that day.  Anish is married and is a devoted father of two sweet girls (3 and 8).  The girls haven’t been able to see their father since his diagnosis out of fear of infection.

Anish is one of the most positive and generous people, his friends say. He is a tech entrepreneur and Cornell grad, and he has a deep effect on people wherever he goes. He puts you at ease, makes you laugh, and simply makes you feel better about yourself. He can walk into a room where he knows almost no one and he leaves as everyone’s friend.

Unfortunately, only 3% of the members of the bone marrow registry are South Asian.  Given that matches are based on ethnicity, this is a massive problem for someone of South Asian descent, like Anish.  While anyone can donate their bone marrow, donations through the general registry take anywhere from 6-8 weeks to see if they match with Anish.  A disease like AML does not afford us that kind of time.

Check out the website for Anish: https://www.swab4anish.com/

Even if you are not a South Asian, there is a GoFundMe campaign for Anish that will be used for research and medical kits.

You can also go to gift of life and order yourself a swab kit:  https://www.giftoflife.org/dc/swab4anish